Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts

Thursday, July 12, 2012

Alzheimer's: Forgetting Piece by Piece Review

Alzheimer's: Forgetting Piece by Piece
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This is a wonderful book. Beautifully written and each and every person should get a copy to have of their own.

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Sunday, December 25, 2011

Losing My Mind : An Intimate Look at Life with Alzheimer's Review

Losing My Mind : An Intimate Look at Life with Alzheimer's
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As a reader who has progressed from mild to moderate Alzheimer's [ALZ aka CRS]since January, 2002; and who is acutely aware of his own Rapid Onset in a Late Onset prognosis, I begged my Caregiver to order this for me asap, which she did. My own CRS has caused me to become unable to view complicated movies such as "Iris" and "Godsford Park" or multilayered television such as "West Wing" or "CSI." Similarly, the ability to complete reading a book more than 3 or 4 pages at a time has departed, never to return. But, like when I received "The Forgetting" by Shenk, I was able to read this 207 page saga, cover to cover, in less than a single 24 hour time span, aka "one day". My window of clarity, which happens less than once a quarter, gave me the grace to assimilate deBaggio's message, just as I was able to do before I became an Emeritus Professor in 1993.
The writing by DeBaggio is superb, his poetry shines on every page! And he has been blessed with outsanding collaborators and editors who polished his rough diamond into the superb blue white gem which "Losing My Mind" is. De Baggio does NOT record a descent to madness, but rather an ascent into a Mount Carmel of shining sanity, despite his testimony to the contrary. The literature of ALZ is overwhelmed with desciptions, diagnoses,and understandings for/of the saintly Caregivers and facilitators who guide our descent into a Dante inferno. BUT, there is next to nothing wherein the person diagnosed with Alzheimer's tells us what is going on inside their crania. "Speaking with Alzheimer's" and "Into the Labyrinth [out-of-print]" are two other exceptions.
Once we are diagnosed, it is as if we no longer are sentient human beings, capable of intellectual cognition. Our ability to convery our intelligence and meanings to others does deteriorate rapidly, particulary with aphasia, but the human entity is still there and functioning even though the ability to respond has vanished: i.e. a CRSer hears and understands all that is said in his/her presence, even though the ALZer cannot communicate that understanding.
Inspired by DeBaggio, I, too, have commenced a Journal of sorts, with the hope of telling others exactly what my sensations are as my hippocampus turns into Gorgonzola. {In my own situation, I have rewired my brain to eliminate frustration over a lack of word recall, and working memory recall, with the help of positive reinforcement, Qi Gong Nirvana state deep meditation, Vitamin B6, B12,E, and Aricet. Thus I have forced a window of clarity to write this critique, and DeBaggio has given this clinically diagnosed unipolar Depressive and CRSer hope that he can aid others before I am unable to lift my head or swallow. Like DeBaggio, the light at the end of my tunnel is an ALZ locomotive, at full speed, headed towards my demise, yet like him, I hope I can locate an agent, collaborator, and editor, so that my own Pilgrim's Progress will be a gift to my seven children and eleven grandchildren, {I include Andrew!}, when the words jumble and chaos reigns supreme, as it already has commenced.
Thank you very much Thomas, for your Augustinian "Confession!" I wish all of us fellow travelors, a "Safe Return."

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Thursday, November 17, 2011

Memory Rehabilitation: Integrating Theory and Practice Review

Memory Rehabilitation: Integrating Theory and Practice
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They say the memory is the first thing to go, but can it be taken back? "Memory Rehabilitation: Integrating Theory and Practice" is a scholarly psychological text discussing memory and how to rehabilitate it when faced with disorders such as amnesia, memory loss attributed to age and other disorders such as Alzheimers. The therapies listed include everything from simple aids to ways to train one's mind. "Memory Rehabilitation" is a informed and highly scholarly text that does well in every community or college library collection that focuses on psychology and its disorders.

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From a well-known authority, this comprehensive yet accessible book shows how state-of-the-art research can be applied to help people with nonprogressive memory disorders improve their functioning and quality of life. Barbara Wilson describes a broad range of interventions, including compensatory aids, learning strategies, and techniques for managing associated anxiety and stress. She reviews the evidence base for each clinical strategy or tool and offers expert guidance on how to assess patients, set treatment goals, develop individualized rehabilitation programs, and conduct memory groups. The book also provides essential background knowledge on the nature and causes of memory impairment.

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Saturday, July 23, 2011

The Moon in the Water: Reflections on an Aging Parent Review

The Moon in the Water: Reflections on an Aging Parent
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Kathy Phillips writes of her experiences as she takes her aging father from his house in Connecticut into her apartment in Hawai'i. She is middle-aged and single with a Ph.D. in Comparative Literature, but considers herself "a closet religion major." He is a retired fireman who needs a wheelchair and has memory loss.
The author uses the symbolism and iconography associated with Water Moon Quan Yin, a specific aspect of the Buddhist boddhisattva (enlightened soul), to frame her compassion and caring as she copes with the problems and adjustments both people must face in dealing with their new living situation. Anyone who has been in this situation of suddenly caring for an aging parent knows the difficulties of such a change. The author has a brilliant idea to call on the Goddess of Compassion as a guide at this time of her life.
Each chapter begins with a description of some painting or other depiction of Water-Moon Quan Yin pointing out the symbolism and meaning. She then goes on to describe an event in her life with her father that is wonderfully gentle and compassionate (even when the reader can see the frustration and difficulties behind the text). It is in these loving depictions of the process of interpersonal integration that this book is at its best.
The verbal descriptions of Quan Yin and her role in Buddhist thought are well done and ideally suited to the non-academic reader. While a lesser part of the book, they are a joyful addition. I would not recommend this book as a first source for Quan Yin study, but it is a pleasant benefit for those seeking information on elder care.
I feel that the weakest part of the book is the Quan Yin iconography. Either absent, poorly reproduced in black and white plates, or sketched by the author they leave me craving more. The author does provide a 6 page listing of "Sources for Art Works Described or Reproduced" for those like me who cry out for more. However full-color prints would have been a delight to match the gentle prose of the text.

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Named a Best Book of 2008 by Library Journal
In a series of moving vignettes, the author begins by describing a particular representation of Water-Moon Kuan Yin, a Buddhist teacher and goddess associated with compassion, who often sits on a precarious overhang or floats on a flimsy petal.Then Kuan Yin steps out of the frame to join the author in the mundane challenges of caring for her father-transferring his health insurance, struggling with a wheelchair van, managing adult diapers, or playing in the fictions of dementia.From perplexed to poignant to funny, the vignettes record the working-class English of a fading but still wise dad, and they find other human versions of Kuan Yin in a doctor who will still make house calls or kind strangers in the street.
The book includes ten illustrations: both classical representations of Kuan Yin and also the author's own drawings, which adapt Kuan Yin in an act of practical spirituality, reading art through life and life through art. Each vignette invites the harried caregiver to take a deep breath and meditate on the trials and joys of caring for an aging parent.

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